The transition from childhood to adulthood in children with cerebral palsy: About 66 Tunisian patients
Mrs Ines ALOULOUa, Mrs Sonia LEBIBa, Mrs Imen MIRIa, Ms Olfa KHARRATa, Mrs Fatma Zohra BEN SALAHb, Mrs Catherine DZIRIa
a Institut Kassab, b Institut Supérieur de l'éducation spéciale
The aim of the management of cerebral palsy sequelae vary with age of the patient and the clinical presentation. The transition from childhood to adulthood is a special period requiring medical and social support.
The objective of this work is to show the clinical and social evolution in Tunisian patients with cerebral palsy followed from childhood to adulthood.
Materials and methods:
This is a descriptive study. We included patients with cerebral palsy sequelae and having greater or equal than 17 at the time of the study. We excluded patients with motor disabilities not related to cerebral palsy.
For each patient, we determined the age, sex, clinical presentation, ways to supports. For patients with a recent review, we determined the clinical presentation, aggravating factors, social and professional future. In the other cases, a phone interview was conducted to collect such data.
We collected 66 patients. The mean age was 23.65 years. The clinical presentation was spastic tetraparesis in 54.5% of cases, hemiparesis in 30.3% of cases and spastic diplegia in 15.1% of cases.
The results of this study will be published during the congress in front of the unavailability of all data at that time.
The transition from childhood to adulthood is a critical period which requires several challenges. Difficulties are raised in our country in relation to the non proximity of care and lack of appropriate social and professional structures.
SOFMER recommandations 2012. Handicaps moteurs et associés:le passage de l’enfant à l’adulte.Enjeux médicaux et médico-sociaux dans la période 15-25 ans.
M.Roquet et al.Effet de l’âge et de la transition enfant-adulte sur la prise en charge médicale et rééducative des personnes avec paralysie cérébrale en Bretagne.Annals of Physical and Rehabilitation Medicine Vol 57, Supplement1,May 2014,e356.
P. Gallien et al.Douleur chez l’adulte atteint de paralysie cérébrale. Motricité Cérébrale : Réadaptation, Neurologie du Développement Vol 30, Issue 3,September 2009 :103-7.
Keywords : cerebral palsy-outcome-social participation