The synergism between health professionals and users' representatives in the care of persons with brain injuries
Mrs Marie-Christine CAZALSa, Mrs Christine MARUÉJOLSb, Dr Michel ENJALBERTb
a UNAFTC, b AFTC-LR
Introduction: The synergism between the regional association of brain-injured persons' families (AFTC-LR) and the regional health professionals has a long-standing history in the Languedoc-Roussillon region.
Methods: The regional association of brain-injured persons' families (AFTC-LR) has, since its creation, worked in synergism with the hospitals' referents in the field, as much in acute care as in rehabilitation (Montpellier and Nîmes Universitary Hospitals, Perpignan Hospital, Coste-Floret Hospital in Lamalou-les-Bains and Bouffard-Vercelli Centre, in Cerbère), but also in the sanitary, medico-social and social network which intervenes after the rehabilitation care (specialized home in Lamalou-les-Bains, ADAGES, educational institute in Osséja...).
Results: This synergism led to the participation of the AFTC-LR in the management of these different departments, in the co-building of the care networks, in the definition of the regional network "brain injured persons", in many local, regional or national initiatives (for exemple : neuro-psychological evaluation for driving licence).
Discussion: The definition, within the association, of a medical referent responsible for the relationship with the health professionals allows the development of these different initiatives.
Keywords : health professionals, users representives, brain injured people