Survey of therapeutic education to patients with MS
Mrs Nathaly JOYEUXa, Ms Juliette BERTINa, Ms Margot GENTYa
Since 2006, HAS described for MS patients a course of treatment involving diagnostic structure and multidisciplinary care supplemented by psychosocial interventions.
A survey is conducted to analyze the supply of therapeutic education (FTE) including workshops by speech may be available to allow the patient to learn to manage his illness.
A questionnaire was built and proposed on consumer websites.
470 usable responses have been collected, supplemented with 20 semi-structured interviews for comparison.
The first analyzes show that the notion of care course is unclear patients and FTE misused offer. There is a significant difference between the patients 'informed' (health professionals MS) and non-health professionals patients. The former are in fact capable of lasting influence on the treatment unlike the latter. Speech therapy's contributions are unknown to both patients and health professionals according to the patients. Frequently used maintenance tools, like quality of life scale (MS-59) rarely or never address the swallowing difficulties, language or communication.
The use of tools do not systematically addressing all aspects of the symptoms of MS does not allow the patient to make speech therapy follow-up queries. Furthermore MS patients are poorly informed or trained and are not able to self-manage their chronic disease.
HAS. (2006). Guide affection longue durée : Sclérose en plaques. Saint-Denis-La-Plaine : HAS
APF (2006). Etats généraux de la SEP. Livre blanc de la Sclérose en plaques.http://www.sclerose-en-plaques.apf.asso.fr/spip.php?article295
Keywords : Therapeutic education - MS - speech therapy