Development of an application designed for children with juvenile idiopathic arthritis
Dr Jean-David COHENa, Mr Damien BENTAYOUb, Mr Marc-Antoine BERNARD-BRUNELb, Mrs Sonia TROPÉc
a CHU Lapeyronie, b CG Artist, c ANDAR
Juvenile Idiopathic Arthritis is the most common chronic paediatric rheumatic disease and cause of physical and psychological disability, with family and school consequences.
If the advances in therapeutics have revolutionized the outcome of children with JIA, it is necessary to develop educational materials to increase their independence and improve their quality of life.
Information about the disease and treatments, the ability to cope with difficult situations, having good reflexes concerning biotherapies are all skills needed to live well the disease.
Democratization of computers and smart phones has led us to develop a serious game for children as an educational learning instrument.
The game was developed according to the steps of Assessment, Design, Development, Implementation, and Evaluation.
A steering committee was formed with a pediatric rheumatologist, a patient organization and an agency of video game developers.
Decisions were strained by a limited budget support.
The National Association against Rheumatoid Arthritis initiated the project and provides funding, manages logistics and monitoring.
The pediatric rheumatologist initially established a series of themes to be developed and transmitted scientific data to developers.
The developers have proposed animations, graphics, game plays.
The committee has defined the specifications at different points during physical meetings and conference calls:
- Themes and key messages
The committee decided to create an adventure game with differents interactives activities.
The following directions have been validated:
- Development of a serious game powered by Unity® for computers, smartphones, tablets to allow use in all places, designed to run on the IOS and Android operating systems.
- Definition of key messages and themes: family, school, sport, hospital, rehabilitation, treatment, further investigations.
- Graphic choices :
Hospital (single place with the greatest number of possible themes), Two avatars to facilitate the identification of players.
This is the first application dedicated to JIA.
To ensure the appropriateness of its speech, its ergonomics and ease of use, the global level of satisfaction, a neuropsychiatrist and the KOURIR organization (parents of children with JIA), will evaluate the beta version.
Eventually, other game trays could complement this version in the future.
Keywords : Application, Therapeutic education, Juvenile Idiopathic Arthritis