Post stroke therapeutic education program: the experience of three aftercare and rehabilitation structures specialized in neurology in Lower Normandy
Dr Nathalie BEUZELINa, Mrs Catherine TIBERGHIENb, Mrs Michèle GODIGNONc, Mrs Eliane FAGUAISd, Mrs France BOISGONTIERa, Prof François LEROYc, Dr Patrick HO VAN TRUCb, Dr Marianne HAMONa, Dr Antoine DESVERGEEc, Mrs Mariannick FOURREAUb, Dr Corinne JOKICa
a SSR Système Nerveux, Centre Hospitalier, 5, rue de l'Hôpital, 14260 Aunay Sur Odon, b IMPR du Bois de Lébisey, Allée des Boisselles, 14200 Hérouville Saint Clair, France, c CHU de Caen - service de Médecine Physique et Réadaptation, Avenue de la Côte de Nacre, 14033 Caen Cedex 9, France, d Réseau de Santé du Bessin, 3 rue François Coulet, 14400 Bayeux, France
Since 2011, our work group involves three structures of aftercare and rehabilitation (SSR) and a health network specialized in Therapeutic Education. On the basis of the guidelines by the SOFMER and the SFNV, a Therapeutic Patient Education (TPE) program was developed dealing with 7 frequent post stroke physical or cognitive consequences. The point is to present the results after the implementation of the first themes.
Material and methods :
The steering committee (COPIL), created in December 2011, and supported by 8 work groups, achieved the elaboration of 38 TPE workshops. Patients and/ or caregivers can join TPE sessions during their hospitalization in SSR wards, or later on (consultation, or medical and social structures). After the educational diagnosis interview and according to the post stroke consequences and to the skills they wish to improve, they take part in the five workshops, hosted by trained professionals. 3 to 6 months after the session, the educational improvements, and the patients’ and caregivers’ satisfaction are assessed during a consultation.
We have experienced the setting up of workshops in order to evaluate the feasibility for one year now, especially for the workshops elaborated by another SSR wards. Until now, 4 topics for a total of 23 workshops have been tested in our three structures.
Results / Discussion:
27 patients (16 suffering from an ischemic stroke, 11 from an hemorrhagic stroke) and 12 family caregivers have benefited from TPE sessions in the 3 SSR wards. All patients had an educational diagnosis. Participation rate scores 98% for patients, 89% for caregivers. According to items assessed, satisfaction rate scores between 83% and 94%. Self assessment of workshops by professionnals allowed to improve educational tools and to implement improvement axes.
www.sofmer.com / Eléments pour l’élaboration d’un programme d’Education Thérapeutique spécifique au patient après AVC.
Beuzelin N, Programme d’éducation thérapeutique du patient (ETP) sur la prévention des chutes après un AVC : proposition d’ateliers, Thèse de médecine, 2014.
Keywords : Therapeutic Education, consequences of stroke, caregivers' support