Methods of information provision for the 1st therapeutic leave after brain injury– opinions of patients and carers. Patient Education Program: Hemidom
Mrs Elise GEETSa, Mrs Gaëlle JÉGOUSSEa, Mrs Bérengère KERTESZa, Mrs Clémence LENORMANDa, Mrs Marta AZCARATEa, Mrs Patricia DIARDa, Mrs Annabelle ARNOULDa, Mr Alain PIEPLUa, Mr Hugues MICHELONa, Mrs Marie Agnès DESBORDESa, Dr François GENÊTa, Dr Julie PAQUEREAUa
a hopital Raymond Poincaré
Aim: to identify patient and carer expectations regarding information necessary for the first therapeutic leave. This is part of a Patient Education Program on therapeutic leave for patients with brain injury.
Patients and methods: questionnaires designed by the multidisciplinary team were given to 30 hospitalised patients and their families before or after the first leave. A semi-quantitative, 4 level scale was used to evaluate the relevance of information received before the first leave, and the choice of information methods.
Results: 20 patients (5 before and 15 after the first leave) and 16 carers (5 before and 11 after) filled in the questionnaire. The results highlighted a need for information on medication (15/20 ; 75% patients - 12/16 ; 75% carers) and what to do if a problem arose (11/20 ; 55% patients - 11/16 ; 68.8% carers). Carers reported a need for information regarding emotional (12/16; 75%), cognitive and behavioural (10/16; 62.5%) disorders. Discussion with a professional was the preferred method of information (7/17; 41.2% patients - 10/16; 62.5% carers) followed by an information leaflet (5/17; 29.4% patients - 3/16; 18.8% carers) and a presentation by a professional (4/17; 23.5% patients - 2/16; 12.5% carers). These methods were preferred to a presentation from a professional from out with the hospital (1/1; 5.9% patients - 1/16; 6.3% carers). The sub-group of patients who had not yet been on leave preferred the information leaflet (2/5; 40.0%).
Discussion-Conclusion: The study highlighted the benefit of discussion time with a professional to prepare the first therapeutic leave. Patient education is thus relevant in this context and follows the recommendations of the French Health Authority (HAS1).
1. Eléments pour l’élaboration d’un programme d’éducation thérapeutique spécifique au patient après AVC - SOFMER, SFNV - 2011
Keywords : patient education - brain injury - carer